Welcome to my website!


Welcome to my website!

 

My name is Adaś (pronounced “Adash” and meaning little Adam). I am seven years old (much older than in the photo to the right!). My parents tell everyone I am a very cheerful child. I love to play, especially when my big brother Krzyś plays along

 

Otherwise, though, my days are very different from those of other children my age – several times a day either my mum or dad gives me a hypertonic saline inhalation, followed by chest physiotherapy (chest-clapping), and on top of that there are plenty of medicines for me to take, including antibiotics or funny granules called Creon, which I need to take with my meals to be able to digest food.

 

All this is because I have CYSTIC FIBROSIS. For more information on my disease, please see the What is CF? section.

 

 

My parents are doing all they can to make sure I’ve got everything I need to slow down the progress of the disease, but they are often anxious about the costs of my present and future treatment (Cost of Treatment). 

 

That is why they are asking those who pay their taxes in Poland to donate 1% of their tax to help cover the costs of my medical care. See the 1% OF YOUR TAX section for details.

 

THANK YOU!

 

 

I’ve had three operations on my intestines. On 21 March, I had my partial stoma reversal op at the "Litewska" Children’s Hospital in Warsaw. In November 2013 I had my final stoma reversal op. 

 

You can find details of the procedure as well as the latest news and photos of me and my family in the

"Blog"

sections 

 

Did you know that in Europe one in 25 people carries the defective gene responsible for cystic fibrosis? Cystic fibrosis is inherited in an autosomal recessive pattern, which means that it occurs when a child inherits two defective copies of the gene responsible for the condition, one from each parent. The disease occurs in one in 2,500 Caucasian newborns.